Fatherhood, Hijacked | When Life Doesn’t Go According to Plan

    In the world of Special Needs parenting, moms usually get all the press (well, of the press we do get.)  Mom is usually the one to duke it out at IEP meetings.  Moms rule most of the blogosphere.  Moms march on Capitol Hill.  And all those da Vinci, Michelangelo, and Raphael depictions of the Madonna? (The Virgin,…[READ MORE]

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“What About My Child?!” Amidst Grads, Gowns & Grief, A Different Story Unfolds

  Ah, the merry month of June!  A joyous and hectic season.  Flurrying about between graduations and gowns, gifts and weddings. “What’s next?  Which college?  What city?  Which company?” Their graduations and gowns; their shiny gifts and weddings.  I smile to suppress the slight rankle of bittersweet.  For within these hallowed months, the ghost of my Idealized Child returns to haunt.…[READ MORE]

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How Superheroes Decompress: Respites & Shawarma (A Tribute to Volunteers)

    Confessions of a Respite Groupie Hello.  My name is Diane.  And I am a self-professed Respite Groupie.  If there’s a church respite event within a 45-minute radius of our home:  We.  Are.  There.  “Neither rain, nor sleet, nor dark of night…”  Whatever, man.  We are there.   It’s the only event I’m ever on…[READ MORE]

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On Motherhood, Meals & Mayhem | Mother’s Day 2014

    Breakfast of Chumpions One winter morning in 1988, I ran out the door on my way to school.  I was late, per usual, so I skipped breakfast.  High school seniors are too cool for breakfast anyway. My mother wasn’t having it.  She chased me out to my car in her pajamas, and pressed a half-eaten SKOR bar and Coke…[READ MORE]

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Special Siblings: Why It Doesn’t Have to be a Snowman

  In honor of Autism Awareness Month and National Sibling Day (April 10), today’s post celebrates the unique, complex and extraordinary bond between special needs “Sibs” and their differently-abled brothers and sisters.   Do you wanna build a snowman?
 Come on let’s go and play
 I never see you anymore
 Come out the door
 It’s…[READ MORE]

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How Special Needs Ministry Benefits Volunteers & Churches | Meet Mr. Nick

  In last week’s post, I shared about how Special Needs Ministries are needed to reach the 90% of special needs families who do not attend church.  Most simply can’t.  I also shared a few practical ways that extended –and spiritual– family can help. You can imagine how inclusive churches and special needs ministries bless…[READ MORE]

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How To Support Special Needs Families & Ministries | BASS Conference 2014

  This is my family.  Over the last ten, post-diagnosis years, these fine folks have looked for excuses to line our pockets, knowing full well we have gaping holes in them.  My parents have provided us with uncountable financial support, particularly during our chaotic Early Intervention Years, when we hemorrhaged money for therapies ($7,000.00 a month out-of-pocket.)…[READ MORE]

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What Now? Overwhelmed & Underqualified | When Life’s Got You Hiding in an Upper Room

    “Who me?  A Special Needs Parent?  I can’t do this!  I’m not qualified.” Growing up, I was afraid of those handicapped kids, tucked away in the portables at the rear of campus.  I probably even used The R Word.  Even as an adult, I avoided making eye contact with someone in a wheelchair.…[READ MORE]

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Special Teams (The Kicker) | A Post-Game Huddle

Confession: I’m not much of a football person.  I just can’t wrap my brain around all the rules.  I’m not a rules person.  As they say in the Pirates of the Caribbean, “Rules? They’re more like guidelines, anyways…” Most of the time, I’m like this,   But I can get into a Super Bowl party (who…[READ MORE]

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Got a Heart for the Disabled? How to OVERWHELM a Special Needs Family

    In summer 2012, our family had the honor of being interviewed by Joni Eareckson Tada.  Getting personal time with Joni and Ken was a privilege already, let alone being featured on her radio program.  But we had no idea that would lead to being selected for the annual Valentines campaign, “Hearts for the Disabled.” Almost…[READ MORE]

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When Your Temple Gets Wrecked: From Hallowed to Hollowed & Back Again

    Perhaps an ultrasound detected an abnormality: a potential genetic defect.  Perhaps physical evidence presented itself at birth: a disfigurement.  Perhaps years went by of blissful childhood, until subtle hints began to emerge: a series of missed developmental milestones, or a disconcerting sense of “something just not right.” Regardless of how incremental the onset, the…[READ MORE]

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20 Ingredients to a Rock Star Special Needs Dad & Husband: Encomium of Eddie

January 13, 2014.  My husband turns 44 today.  He hates a fuss over him.  Well, too bad.  His wife happens to be a grateful special needs mom and writer.  Pardon me, as I hijack my own blog to celebrate my man on the world wide web.    20 Reasons Why Eddie Kim is a Rock…[READ MORE]

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School Concert: That Moment Your Kid Finally Sees You

  Like many grade school parents, I attended a holiday concert at my younger son’s school back in December. ‘Twas the standard, seasonal fare including Jingle Bells and Silent Nights.  Some students turned out in festive dresses or collared shirts with vests.  Still others (like mine) wore distinctly un-festive, everyday school clothes.  We didn’t get…[READ MORE]

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Thanking YOU for 2013: A Peek Behind the Curtain

  Happy New Year’s Eve!  Reflecting on 2013 (wrapping up Year One of the blog!) today’s post offers a peek behind the curtain: The genesis behind the blog, and my unexpected entry into writing.  Unplugged, unpolished and ungrammatically correct, I’m just talkin’ to you as a friend today, to say THANK YOU…     Why…[READ MORE]

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Mary: How is this “Blessed and Highly Favored”?!

    In the sixth month of Elizabeth’s pregnancy, God sent the angel Gabriel to Nazareth, a town in Galilee, to a virgin pledged to be married to a man named Joseph, a descendant of David. The virgin’s name was Mary.  The angel went to her and said, “Greetings, you who are highly favored! The…[READ MORE]

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Unwelcome Gifts: Ambushed by Grace

Have you ever been ambushed by a gift?  Did the Gifter insist, even though you swore up and down you didn’t need it?  Did they end up being right?  Yeah, me too. *********************************** December 2005.  Christmas was approaching.  At the time, my husband and I were directing a college ministry.   ‘Twas the season of…[READ MORE]

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Waiting through fear and grief, “Do not be afraid!”

  “Your child has autism.  He’ll need at least 40 hours of intensive therapy a week.  He may not learn to speak, function or live independently.  He’ll likely not go to college, marry, or have his own family.  You’ll have to abort your plans and rearrange your lives to care for him full-time.  His prognosis?…[READ MORE]

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Why I Don’t Mind Being a Dis-Abled Family in a Hyper-Abled World: Part 2

    Today’s post:  A continuation from Part One, “Why I Don’t Mind Being a Dis-Abled Family in a Hyper-Abled World.”   The Snack Shack A few weeks after we moved in, Justin set up a Snack Shack in the garage to “sell” free Otter Pops.  It was more a ploy to help him meet and make…[READ MORE]

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Why I Don’t Mind Being a Dis-Abled Family in a Hyper-Abled World: Part 1

    In the last nine years post diagnosis, our family has made three significant moves to new school districts or cities.  Each move was driven primarily by Jeremy’s schooling needs.  In this regard, perhaps we’re no different from many modern families. After an extraordinary run of six years at our last school district, I thought…[READ MORE]

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Why This Special Needs Tiger Mama Bear Didn’t Intervene

  There are helicopter parents, then there are Special Needs parent stealth bombers.  How this Asian Special Needs Tiger Mama Bear (I know.  That’s a lot of mixed metaphors) nearly became a weapon of mass destruction and ravaged a playground when her cub got threatened.  Why I didn’t intervene. ******************************************** It was a classic Special Needs…[READ MORE]

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