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Special Siblings: Why It Doesn’t Have to be a Snowman

  In honor of Autism Awareness Month and National Sibling Day (April 10), today’s post celebrates the unique, complex and extraordinary bond between special needs “Sibs” and their differently-abled brothers and sisters.   Do you wanna build a snowman?
 Come on let’s go and play
 I never see you anymore
 Come out the door
 It’s like you’ve gone away We used to...

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School Concert: That Moment Your Kid Finally Sees You

  Like many grade school parents, I attended a holiday concert at my younger son’s school. ‘Twas the standard, seasonal fare including Jingle Bells and Silent Nights.  Some students turned out in festive dresses or collared shirts with vests.  Still others (like mine) wore distinctly un-festive, everyday school clothes.  I didn’t get the memo, it appeared. Judging by the...

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Waiting through fear and grief, “Do not be afraid!”

  “Your child has autism.  He’ll need at least 40 hours of intensive therapy a week.  He may not learn to speak, function or live independently.  He’ll likely not go to college, marry, or have his own family.  You’ll have to abort your plans and rearrange your lives to care for him full-time.  His prognosis? Unknown.  You’ll just have to wait and see.” In...

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“I Can Never Die”

  Who Will Take Care Of My Child After I’m Gone?   Parents of “normal” children don’t have to worry about this.  It’s a given that children grow up to become independent, and go off to raise children of their own.  Not so for my family.  As a perennial, functionally five-year old, our autistic son will remain dependent on us for his daily care, for the rest of...

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