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20 Things I Know Now, That I Wish I Knew Then (The Special Needs Parent-Ninja Arts)

    From time to time I get asked, “Do you have any advice for a Special Needs Parent?”  It’s usually from someone freshly reeling from their child’s diagnosis, or a friend who wants to be supportive. BLESS THEM. To which I say (or think), Ohboyohboyboy! (and start mentally salivating.) I devoted this blog on Special Needs parenting to discuss exactly that: The...

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2014 In Review | Why I’ve Been Away

    Gracious Blog Readers, I know. I’ve been away. It’s been over six months since I last wrote a post.  Thank you, though, for sticking around to see this one. It’s been a hard year.  One that whooped me to the likes I haven’t experienced since Autism D-Day ten years ago.  No incidents of death, disease or dismemberment.  And certainly...

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Special Siblings: Why It Doesn’t Have to be a Snowman

  In honor of Autism Awareness Month and National Sibling Day (April 10), today’s post celebrates the unique, complex and extraordinary bond between special needs “Sibs” and their differently-abled brothers and sisters.   Do you wanna build a snowman?
 Come on let’s go and play
 I never see you anymore
 Come out the door
 It’s like you’ve gone away We used to...

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Waiting through fear and grief, “Do not be afraid!”

  “Your child has autism.  He’ll need at least 40 hours of intensive therapy a week.  He may not learn to speak, function or live independently.  He’ll likely not go to college, marry, or have his own family.  You’ll have to abort your plans and rearrange your lives to care for him full-time.  His prognosis? Unknown.  You’ll just have to wait and see.” In...

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Why This Special Needs Tiger Mama Bear Didn’t Intervene

  There are helicopter parents, then there are Special Needs parent stealth bombers.  How this Asian Special Needs Tiger Mama Bear (I know.  That’s a lot of mixed metaphors) nearly became a weapon of mass destruction and ravaged a playground when her cub got threatened.  Why I didn’t intervene. ******************************************** It was a classic Special Needs Mama Bear...

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Faith Through Disappointment – Part 3: GET PEOPLE

    Four-part series, “Faith Through Disappointment” continues. Of the “Four Gets,” the first is to Get REAL:  Giving ourselves permission to grieve or get angry. The second, is to Get HELP:  Be willing to lean on others.  We were not meant to carry our burdens alone. The third, is to Get PEOPLE:  God provides help through people, whether they understand our...

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Faith Through Disappointment – Part 2: GET HELP

  In the previous post, I began a four-part series, “Faith through Disappointment.”  Of the Four Gets, the first was to Get REAL (giving ourselves permission to grieve or get angry.)   The series continues with the second Get:  Get HELP.    ************************************************************** 2)  GET HELP – Be willing to receive/ask for help Asking for help...

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“I Can Never Die”

  Who Will Take Care Of My Child After I’m Gone?   Parents of “normal” children don’t have to worry about this.  It’s a given that children grow up to become independent, and go off to raise children of their own.  Not so for my family.  As a perennial, functionally five-year old, our autistic son will remain dependent on us for his daily care, for the rest of...

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