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Special Siblings: Why It Doesn’t Have to be a Snowman

  In honor of Autism Awareness Month and National Sibling Day (April 10), today’s post celebrates the unique, complex and extraordinary bond between special needs “Sibs” and their differently-abled brothers and sisters.   Do you wanna build a snowman?
 Come on let’s go and play
 I never see you anymore
 Come out the door
 It’s like you’ve gone away We used to...

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How Special Needs Ministry Benefits Volunteers & Churches | Meet Mr. Nick

  In last week’s post, I shared about how Special Needs Ministries are needed to reach the 90% of special needs families who do not attend church.  Most simply can’t.  I also shared a few practical ways that extended –and spiritual– family can help. You can imagine how inclusive churches and special needs ministries bless special needs families like mine.  And as a Special...

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How To Support Special Needs Families & Ministries | BASS Conference 2014

  This is my family.  Over the last ten, post-diagnosis years, these fine folks have looked for excuses to line our pockets, knowing full well we have gaping holes in them.  My parents have provided us with uncountable financial support, particularly during our chaotic Early Intervention Years, when we hemorrhaged money for therapies ($7,000.00 a month out-of-pocket.)  St. Patrick’s...

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What Now? Overwhelmed & Underqualified | When Life’s Got You Hiding in an Upper Room

    “Who me?  A Special Needs Parent?  I can’t do this!  I’m not qualified.” Growing up, I was afraid of those handicapped kids, tucked away in the portables at the rear of campus.  I probably even used The R Word.  Even as an adult, I avoided making eye contact with someone in a wheelchair.   “Do I make eye contact, or is that rude?  Should I open the door for them or is that...

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Special Teams (The Kicker) | A Post-Game Huddle

Confession: I’m not much of a football person.  I just can’t wrap my brain around all the rules.  I’m not a rules person.  As they say in the Pirates of the Caribbean, “Rules? They’re more like guidelines, anyways…” Most of the time, I’m like this,   But I can get into a Super Bowl party (who doesn’t love a snack buffet?)  One of my primitive questions was,  “Lemme get this straight: ...

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Got a Heart for the Disabled? How to OVERWHELM a Special Needs Family

    In summer 2012, our family had the honor of being interviewed by Joni Eareckson Tada.  Getting personal time with Joni and Ken was a privilege already, let alone being featured on her radio program.  But we had no idea that would lead to being selected for the annual Valentines campaign, “Hearts for the Disabled.” Almost a year later on February 14, 2013 we came home to several...

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When Your Temple Gets Wrecked: From Hallowed to Hollowed & Back Again

    Perhaps an ultrasound detected an abnormality: a potential genetic defect.  Perhaps physical evidence presented itself at birth: a disfigurement.  Perhaps years went by of blissful childhood, until subtle hints began to emerge: a series of missed developmental milestones, or a disconcerting sense of “something just not right.” Regardless of how incremental the onset, the...

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20 Ingredients to a Rock Star Special Needs Dad & Husband: Encomium of Eddie

January 13, 2014.  My husband turns 44 today.  He hates a fuss over him.  Well, too bad.  His wife happens to be a grateful special needs mom and writer.  Pardon me, as I hijack my own blog to celebrate my man on the world wide web.    20 Reasons Why Eddie Kim is a Rock Star Special Needs Dad & Husband 1.  When trauma struck, he didn’t fall apart.  We didn’t lose him to...

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School Concert: That Moment Your Kid Finally Sees You

  Like many grade school parents, I attended a holiday concert at my younger son’s school. ‘Twas the standard, seasonal fare including Jingle Bells and Silent Nights.  Some students turned out in festive dresses or collared shirts with vests.  Still others (like mine) wore distinctly un-festive, everyday school clothes.  I didn’t get the memo, it appeared. Judging by the...

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Thanking YOU for 2013: A Peek Behind the Curtain

  Happy New Year’s Eve!  Reflecting on 2013 (wrapping up Year One of the blog!) today’s post offers a peek behind the curtain: The genesis behind the blog, and my unexpected entry into writing.  Unplugged, unpolished and ungrammatically correct, I’m just talkin’ to you as a friend today, to say THANK YOU…     Why I started writing As many of my posts...

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